Klee and Cohen also heralded the efforts of the advocacy community. “ALS advocacy has been strong for quite some time now, and we think it's wonderful,” Klee said.

Leading ALS advocacy group roiled by infighting over money and priorities. ... Depending upon the outcome, some fear that efforts to provide patient services and, in some cases, ...

Passage of the ALS Association-led bill marks a milestone in the fight to alleviate crushing costs incurred by ALS patients and their families AUSTIN, Texas, June 25, 2025 /PRNewswire/ -- The ALS ...

Think of an ALS clock: The day before being diagnosed with ALS, a 35-year-old has a life expectancy of around 40 years. On the day of diagnosis, that suddenly compresses to three or four years.

Tributes to Pete Frates are continuing to pour in following his death Monday after an eight-year battle with ALS, showing how the 34-year-old inspiration behind the “Ice Bucket Challenge” was ...

The Walk to Defeat ALS is the ALS Association’s signature event, with funds raised directly supporting innovative research, care services, and advocacy efforts.

SAN ANTONIO – A San Antonio ALS patient and advocate made his way into an important film that will be shown this week at SXSW.. KSAT viewers have seen Juan Reyes many times in our newscasts. He ...

The 12th annual Hawaii Walk & Roll to Cure ALS kicks off this ... For three years, led by then-president & CEO, Fred Fisher, staff and volunteers engaged in advocacy efforts at the federal ...

During their visit on Wednesday, Oct. 28, they presented Shah with a certified copy of the ALS Advocacy Day Resolution, which declares the third Wednesday in May each year as ALS Advocacy Day.

In this hour of Live at 9: A local couple shares their ALS journey, plus insights from the ALS Association. Midsouth students talk about their award-winning documentaries, and election officials ...

The ALS Association led the advocacy effort behind The Chris Larkin Act, working alongside legislative champion Rep. Ryan Guillen and advocates across the state to push for this life-changing ...